Community voices for health: developing methods of engagement in Somali immigrant communities in the era of COVID-19.

Context: The Somali community in Minnesota has suffered a disproportionate impact of COVID-19. Engaging community members in COVID-19 patient centered outcome related research will be needed to find effective ways to address these disparities. However, COVID-19 disrupted usual methods of community engagement and research is needed to identify how to continue effective engagement. Objective: The Community Voices for Health study explored methods of community engagement and Somali patient and community member priorities for ongoing COVID-19 patient centered research. Study Design: We conducted a survey to engage community members for input on 1) preferred methods of community engagement to ensure broad reach in the community, 2) views on the priorities for COVID-19 related PCOR/CER topics, and 3) views on capacity building needed to support participation in patient centered research projects. Setting or Dataset: 40 Community Ambassadors were recruited to conduct a community-based survey. Population studied: 940 Somali adult patients and community members responded to the survey across the State of Minnesota. 55% identified as female. 77% of participants were born abroad. A range of ages, education levels and household size were represented Results: Survey participants were asked if they had been asked for their input on COVID-19 by any organization or institution and 23% (n=194) indicated they had been asked for their views and 77% (n=653) said they had not. The top three preferred methods of engagement were to participate in engagement by phone (n=533), text message (n=367) and socially distanced in person (n=227). Survey participants were provided with a list of 14 different topics relating to COVID-19, which were identified in collaboration with a Community Advisory Group. The top three topics considered a priority for future research in relation to COVID-19 were the care provided to Somali patients with COVID-19, ways to encourage prevention of COVID-19 and experiences of racism in the health system in seeking help for COVID-19 Conclusions: The Somali community in Minnesota is very engaged and keen to participate in community engagement when it is presented in a culturally relevant, trusted way. The survey was able to use methods that supported a reach across the state of Minnesota and is one of the most comprehensive engagement efforts conducted with the Somali community in Minnesota on any topic.

Testing a Religiously Tailored Intervention with Somali American Muslim Women and Somali American Imams to Increase Participation in Breast and Cervical Cancer Screening.

Somali American women have low rates of breast and cervical screening. This research aimed to test the feasibility and impact of religiously tailored workshops involving Somali American Muslim women and male imams to improve intention to undergo breast or cervical cancer screening. Religiously tailored workshops addressing cancer screening (each approximately 3 h in length) were conducted with 30 Somali American women and 11 imams. Pre- and post-test surveys measured attitudes toward screening, screening intention, and workshop experience. The workshops were feasible, and both the women and the imams found the workshops enjoyable as well as informative. The discussions of religiously tailored messages had a positive impact on attitudes toward cancer screening, and, for the women, a positive impact on intention to screen. Religiously tailored messages can be an important community asset for engaging Somali American Muslim women around the value of breast and cervical cancer screening.

Views of Somali women and men on the use of faith-based messages promoting breast and cervical cancer screening for Somali women: a focus-group study.

BACKGROUND: Screening rates for breast and cervical cancer for Muslim women in the United States are low, particularly for first-generation immigrants. Interpretations of the Muslim faith represent some of the barriers for breast and cervical cancer screening. Working to understand how faith influences breast and cervical screening for Somali women, and working with the community to identify and utilize faith-based assets for promoting screening, may lead to life-saving changes in screening behaviors. METHODS: We partnered with an Imam to develop faith-based messages addressing the concerns of modesty and predetermination and promoting cancer testing and screening. A total of five focus groups were convened, with 34 Somali women (three groups) and 20 Somali men (two groups). Each focus group first discussed participant views of breast and cervical cancer screening in general and then viewed and discussed video clips of the Imam delivering the faith-based messages. RESULTS: Both Somali women and men had an overwhelmingly positive response to the faith-based messages promoting breast and cervical cancer screening. The faith-based messages appeared to reinforce the views of those who were already inclined to see screening positively, with participants describing increased confidence to engage in screening. For those who had reservations about screening, there was feedback that the faith-based messages had meaningfully influenced their views. CONCLUSIONS: Somali immigrant women and men found faith-based messages addressing topics of predestination and modesty and encouraging the use of screening and treatment to be both acceptable and influential. Faith can play an important role as an asset to promote breast and cervical cancer screening, and there may be substantial benefits to adding faith-based messaging to other interventions that focus on improving screening uptake. This may help to address health disparities for Somali women in this area.